NillaSwirl

I have 2 daughters who are terminally ill with Huntington's Disease. This Blog records my feelings and how I handle different situations; hopefully, others may be able to benefit from my experiences.

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Location: Cottonwood, Arizona, United States

Wednesday, January 11, 2006

My Swan



I have been worried the past couple of days since I
found out that "Swan" quit taking her medications.
She gained weight, and it apparently threw her into
a depression. The medication is known to make you
gain weight.

She still worries about appearances. That's very good...
for soon, she will not even care. Neither of them will.
They won't really care about anything. That's how it happened
with their father; but I didn't understand back then...I
suspected and, at times would voice my opinion and fear
that he may be exhibiting signs of the dreaded Huntington's...
his family however, kept assuring me that I was wrong...
I was told, years ago...that the gene skipped siblings...
his mother's sister had it, so she didn't. My husband was
safe...we could have children...

years ago - when there was very little known about
Huntington's Chorea...

They are all so very beautiful. All three. Each having
their own personalities. All so very different...
yet the same...my precious progenies

2 Comments:

Anonymous Anonymous said...

Hey sweetie, I'm sorry that you have to go thru all this, but I'm right here with you. If you ever need to talk, I prolly need to talk too....I love you Grandma!

9:57 PM  
Anonymous Anonymous said...

u need to post more often!!!!

11:34 PM  

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