It's Been a While...

I haven't written in my blog for a while. Depression is setting in as, again I watch Huntington's take it's toll on yet another family member. I'm in a panic; as I sit by helplessly. Huntington's effects ALL family members. Those who live with the victim are greatly stressed...Still, I know that it is impairative that I keep going with this journal. It's good therapy...and the thought of possibly helping another soul thru this terrible illness is very important to me.

Last Saturday...my daughter came to spend the day with me. Her eyes all swollen from her hard earned tears...she curled up in my bed and slept. As I watched her...I saw my little girl...my first born...as a child, who I have protected, nurtured and loved with my very being.

In this stage of Huntington's...there is much confusion. Reality comes and goes. Fear and repulsion of the illness set in. Support and understanding are needed...and it's imperative to make sure the caregivier is also supported.

She said: "Mommy, I'd rather have cancer...anything but this...I'm going to become a vegetable,
and lose all my motor functions...my very ability to think for myself"

Yes baby...I know; and I will be there by your side...to the bitter end...