NillaSwirl

I have 2 daughters who are terminally ill with Huntington's Disease. This Blog records my feelings and how I handle different situations; hopefully, others may be able to benefit from my experiences.

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Name: NillaSwirl
Location: Cottonwood, Arizona, United States

Wednesday, September 27, 2006

Concentrating on Her Children



Swan and her family will be moving into their new home in Rimrock
this weekend. I’m happy for them. Since they have come back home,
they’re been through a lot. The sister’s fighting ... the emotional out
breaks. Both families have had a hard time of it.

DaTuh has decided to withdraw and keep to herself and her immediate
family. I had seen this happen with her Father’s cousins. For years
after the onset of Huntington’s, they had become hermits ... until their
death. I guess this is quite common in Huntington’s patients. They can
seem only to handle their defined little world set before them. I’m
frightened. I so wanted to make memories. I never dreamed this would
be the path she wanted to take. My son-in-law told my youngest that
DaTuh should be concentrating on her children at this point in time. I
agree. As hard as it is for me, she should give all that she is able to those
children . . . my grand babies . . . for they will have to look to a future
without her . . .

I have memories. Memories of her birth, her whole life . . . up to this
point. My DaTuh, my firstborn . . .

1 Comments:

Anonymous Bethany said...

I wish she would turn her full attentions on here children...I love you gramma...

10:39 AM  

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