NillaSwirl

I have 2 daughters who are terminally ill with Huntington's Disease. This Blog records my feelings and how I handle different situations; hopefully, others may be able to benefit from my experiences.

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Location: Cottonwood, Arizona, United States

Wednesday, September 06, 2006




I keep in touch with Tudah and Swan regularly. Tudah had asked her mother if she was mad at grandma too ... Datuh simply said, “Ya know, I just don’t care anymore.” I try to not take it personally because this is the way Huntington’s patients are. They do reach a point where they just don’t care anymore.

Swan is still devastated and very hurt. I know she loves her sister but she’s struggling with the harsh facts of reality as well. They will be moving into their new house at the end of this month. We will visit Cottonwood at that point. I will stop in and see Datuh, as well.

I need to visit Havasu as well, to check on PB. I spoke with her yesterday, and all seems well there.

I haven’t heard from my J’ker. I hear she has started her own business and she regularly checks in on Datuh and Swan. When I visit Cottonwood, I need to see her and those grand babies. I miss them so much.

I miss Cottonwood. The mountain breezes, the beautiful red rocks of Sedona. The very smell of the air. How I wish I could go back home. Soon ...

1 Comments:

Anonymous Anonymous said...

Everything is bad here...I miss you and I can't wait for your visit...Maybe you can fix everything Gramma...You are in fact their mother still. Right?

10:45 AM  

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