NillaSwirl

I have 2 daughters who are terminally ill with Huntington's Disease. This Blog records my feelings and how I handle different situations; hopefully, others may be able to benefit from my experiences.

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Name: NillaSwirl
Location: Cottonwood, Arizona, United States

Tuesday, October 10, 2006



Friday, I will be going to Cottonwood to spend time with Swan and the babies. She called me last night and we talked for a while. I could feel the anticipation in her. How I have missed them all.

I haven’t heard from DaTuh. I toss and turn at night now. I am not getting enough rest when I sleep. I have become moody and melancholy. I know I must snap out of this. I feel I have lost her already . . . and she’s still here. I fight the urge to call her. I know I must respect her wishes.

My granddaughter TuDah, seems much better when I speak with her. I have been so worried about her. Tho things are still the same with her (I’m sure) . . . she appears to be handling it much better. She has much to deal with at her young age. She takes care of her brother as well. She looks after him, and keeps him talking. He goes to her now when he is sad. I’m so proud of this beautiful young woman.

J-ker is still busying herself with helping both DaTuh and Swan. I haven’t been able to speak with her much. She seems tired. I am so grateful for this special daughter. She loves her sisters with all she has . . . She always did. It takes me back to a time when they were younger . . . When my two older daughters were fighting over her attention, J-ker would run to me and say, “Aunt Mom . . . they’re fighting over me again!” I would smile and say, “See how much we love you baby? Leave them alone for a bit and they’ll work it out.” She would then focus her
attentions on P.B. for a time. I miss those days . . .

2 Comments:

Anonymous Bethy said...

I love you Gramma, thanks for what you said...It means a lot to me to know that I haven't dissapointed everyone.I love you and I hope that you are doing good.
LOVE,
Bethy

7:08 AM  
Blogger NillaSwirl said...

It's true baby. I'm very proud of you; and you haven't disappointed me since the day you were born.

11:32 AM  

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