NillaSwirl

I have 2 daughters who are terminally ill with Huntington's Disease. This Blog records my feelings and how I handle different situations; hopefully, others may be able to benefit from my experiences.

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Name: NillaSwirl
Location: Cottonwood, Arizona, United States

Sunday, October 22, 2006



I haven’t heard from my DaTuh. My youngest, P.B. talked with me last night and told me that DaTuh is holding up but is realizing that her mental capabilities are fading fast. I know she’s scared. How I wish, I could reach out to her. If only for a brief moment on the phone . . . just to hear her voice.

I didn’t want this for my children. I wanted them to have full, happy lives. I wanted them to be able to experience so much more than what their short lives are offering. Dear Lord, please help me endure this pain. Please, keep me strong . . .

I spoke with Swan this morning, briefly. She seemed busy with her children so, I didn’t keep her long. Her attention span is also limited. I knew she was trying to concentrate on her babies so, I let her go before I wanted to . . . but, I spoke with her . . . told her I loved her . . . and in my heart and mind, embraced her tenderly . . .

I find myself wishing I could turn back the hands of time, to when they were all young, healthy and happy. I would break that time clock . . . forever keeping my babies safe from harm . . .

2 Comments:

Anonymous Bethy said...

Yeah, but then you wouldn't have all your grandchildren :) And life would be bleak without all of us! I love you gramma.I know that things will turn out ok!

5:08 PM  
Blogger Rogers Place said...

Grandchildren make life enjoyable

6:06 PM  

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