The Verde Valley

I have moved back to the Valley and it feels so good to be home. It's wonderful being around the girls and the grandones again. I've missed them so ...

Swan is not doing so well. Her mental condition has deteriorated greatly. The doctors are continuing to try different medications to ease her suffering but there's not going to be too much more they can do for her; and I know this. Still, I can see the light back in her eyes since I have come home. I spend the days with her and the children while her husbands works. When he comes home, he cooks - cleans up from dinner - and helps Swan with the kids. He's such a good man and, I'm very proud of him.

DaTuh isn't far behind Swan in her illness. She visits Swan a couple times a week and they are good for each other.

It's hard to look at my babies and see them struggle with Huntingtons. The fear in their eyes every time they regress haunts me as I close my eyes to sleep at night. I'm powerless to help them and, for a mother, this is so devastating!

Still, I look at them in awe as they continue their struggle with Huntington's Disease ... and I am filled with pride as they show a strength beyond belief.