The days seem to be running into the next. I am with Swan and her babies most of the time. Sometimes her husband will get out if work early.

DahTu has been coming up lately . . . at least a couple times a week. This helps tremendously. She seems to be able to get Swan to communicate. They always had a need for each other. Even when they were bickering . . . they always “made up” quickly. After all, they’re only ten and a half months apart. I used to call them my “twins”.

TuDah was up for the week as it was Spring Vacation. This was excellent for Swan. TuDah will be sixteen on the 28th of April. She has quite a bit on her plate right now . . . So much to handle . . .
So much to sort out in her young mind.

At the moment . . . all seems well.

I have been spending the majority of my time with Swan and her babies. I’m there during the days while her husband is working.

I have noticed, to my dismay, that Swan is in a world of her own these days. She sits there for hours . . . just staring at the floor. I try and interact with her but she doesn’t respond.

The doctors keep trying different medications and nothing seems to work. I’m not surprised. I’ve seen it all before. It just seems to be happening more rapidly this time around. At the rate the illness is progressing, I’m sure now that my daughters have Infantile Huntington’s. They’ve probably had it from their teens on and, I just didn’t see it. Or is it that . . . I didn’t want to see it.

DaTuh is not far behind. She struggles daily and she always looks like she’s panicking. I rarely see her relax. She’s always up and pacing.

I cry a lot these days. Sometimes, it’s the only way I can go to sleep at night. Maybe I’m trying to wash away some of the pain so I can be ready for the next day. It’s through the grace of God the Almighty I that keep going for, I know it is He who replenishes my strength!